Thursday, September 19, 2013

I heart lyme bloggers! Problems with Lyme tests and IgeneX Western Blot testing instructions

Reading lyme blogs has helped me so very much during this healing journey.  I honestly don't know how I would have managed emotionally without them.  Knowing someone else really understands.  Evidence that you're not actually crazy but that this truly is an experience to hell (and then more hell and then more hell... etc, etc, etc) and back. But you can do it.  Other people do it.  People make it through. The possibility is there.

All that said, I have had Canadian friends ask me how to go about getting tested for lyme in Canada.  Which of course is a big joke because the Canadian testing is flawed.

CanLyme, on their website, states "Evidence suggests that Canada’s Lyme testing methods are flawed. False negative test results are common, especially in the early stages of Lyme. It takes time for antibodies to develop, so early tests often miss the bacteria. Contrary to bureaucratic statements, late stage Lyme disease antibody testing is much less accurate." CanLyme talks a bit more about Canadian testing here. And Dr. Mercola talks about some of the testing issues here.

Nevertheless, I was lucky to come across fantastic instructions for getting tested via a Western Blot test kit for Lyme by IgeneX in the States here. This is so handy to be able to pass along to others who are desperate for testing. Huge thanks to the lovely woman at Lymed Out who took the time to write directions up so clearly! :)

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